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People and Organisations

FEmISA supports women who want to access UAE by giving additional information and answering specific queries.  We also carry out patient advocacy and help women through the hoops of the NHS - contacting PCTs, informing GPs, contacting hospitals whose gynaecologists do not offer alternatives to hysterectomy etc.

FEmISA has also been involved in lobbying, for some time now, to help to ensure that women are informed about embolisation. We actively encourage health professionals and others involved in the delivery of health services to understand the benefits to women from the use of Uterine Artery/Fibroid Embolisation as a treatment option for fibroids. We also ask that women are informed about, and to have access to, this treatment.

Listed below are people or groups whom we have contacted since late 2002. This list was last updated on: 29.1.11 If you know of anyone who should be on the list, and who we appear to have overlooked, please let us know. We are always seeking ways of furthering our message.

  • FEmISA is a member of the Medical Technology Group  whose objectives are to improve uptake and access for patients to new medical technologies to improve health outcomes. MTG has responded to the consultation on the NHS white paper - Equity and Excellence: Liberating the NHS and FEmISA has played a significant part in drafting these responses.
  • Presentation at DH Meeting on Interventional Radiology Nov '10  Took part in a conference on interventional radiolgy by NHS Improvements and DH. It was announced that there would be a Best Practice Tariff for UFE making it more financially attractive for NHS Trust Hospitals to offer it.
  • NICE Interventional Procedures Review - Submission  in July '10 of substantial additional evidence to the second on the 'Safety and Effectiveness' of Uterine Artery Embolisation
  • All Health MPs April '10 - Circulated all MPs with interests in health on the cost benefits to the NHS, the patients and their families, the economy and employers. Received an encouraging response from Earl Howe and a Liberal Democrat MP. After chasing received a useful response from the NHS Medical Director, Professor Sir Bruce Keogh
  • Letter to Professor Lord Darzi,  February '09 - then Health Minister regarding the lack of proper OPCS codes for fibroid embolisation meaning that hospitals offering it are not properly reimbursed by the NHS!  We suggested a special tariff [NHS price]. DH responded that this was the province of NICE. (It is not.)
  • American College of Obstetrics & Gynecology - Challenging the clinical evidence cited in their 'Opinion on Uterine Artery Embolization' and asking them to reconsider their position.
    This was being put to the next ACOG committee.
  • NICE Heavy Menstrual Bleeding Guidelines '06 - FEmISA involved in meetings and submissions - results Jan '07 women with fibroids >3cm MUST be offered fibroid embolisation, myomectomy and hysterectomy.
  • Harry Cayton The Patient Czar - Highlighting the fact that patients are not informed about treatment options and suggesting a change in the law to ensure full information. Also suggesting that patient information leaflets from doctors should have some regulation about accuracy.
    Harry Cayton said that these were important issues, which they would be following up.
  • Melanie Johnson - Parliamentary Under Secretary of State for Public Health
    Via Boris Johnson MP - following up on the rather unsatisfactory response from Hazel Blears, her predecessor. She responded via Boris and thanked FEmISA for their work in this important area.
  • National Press Release - issued to major news organisations with the aim of promoting FEmISA's campaign to raise women's awareness of alternative treatments to hysterectomy and to promote the existence of this website.
  • Diana Organ MP - MP for Forest of Dean
    Informing her about the formation of our group and seeking common points of interest with a group campaigning against unnecessary hysterectomies, which she has helped to start and which operates within her constituency.
  • National Press Release
    issued to major national news organisations outlining FEmISA's concerns over the results of the NICE Interventional Procedures Guidance and the review process itself.
    NICE will be carrying out a full appraisal of all procedures/techniques which offer women the option of avoiding hysterectomy over the coming months.
  • NICE Interventional Procedures Review of UAE - Jan '03 -FEmISA's submission to NICE included 120 clinical papers that NICE had missed.  This and our correspondence to NICE's Chairman turned the guidance around to say that UAE was save enough for routine use...
  • Julia Drown MP - former MP for Swindon
    Asking to help women in Swindon to have access to embolisation treatment. The local Primary Care Trust and gynaecologists refused to refer women from Swindon to have embolisation.
    Julia Drown is very supportive and has written to local gynaecologists for an explanation.
  • Baroness Cumberlege of Newick - Conservative Health Spokesperson
    Informing her about embolisation and asking for her help in gaining access for women at a national level.
    She has asked to be kept updated about embolisation.
  • Dr Gwyneth Lewis - Department of Health
    Asking her advice on how to improve access for women to embolisation. Informing her of new clinical evidence on embolisation on an ongoing basis.
  • The Royal College of Obstetrics and Gynaecology
    Asking them to ask their members - gynaecologists, to inform women of embolisation as a treatment option for fibroids.
    They have declined to do this.
  • Charles Dobson - Department of Health
    Responsible for NICE Topic Recommendations
    Recommending embolisation for a NICE [National Institute for Clinical Excellence] Technology Appraisal on embolisation to show the superior efficacy and cost effectiveness of this fibroid treatment versus hysterectomy.
  • Hazel Blears MP
    As Parliamentary Under Secretary of State for Public Health
    Asking for her help in ensuring that gynaecologists inform women of embolisation as a treatment option for fibroids and complaining about the misleading information on hysterectomy on the Royal College of Obstetrics and Gynaecology Web Site.
  • Dr Gordon Munro
    Acting CEO, The Medicines Control Agency
    Complaining about the lack of information on side effects and complications from hysterectomy in the RCOG patient brochure on hysterectomy.
    They advised although there are tight controls over information supplied with licensed medicines, there is no comparable regulation of information about different surgical options.
  • Prof Black, President
    The Royal College of Physicians
    Asking for help in persuading gynaecologists to inform women about embolisation as a treatment option for fibroids.
    She said she would speak to the President of RCOG.
  • Prof Peter Morris
    President, The Royal College of Surgeons
    Asking for help in persuading gynaecologists to inform women about embolisation as a treatment option for fibroids.
    He said he would pass our letter on to the President of RCOG.
  • Mr Steve Walker
    CEO, NHS Litigation Authority
    Warning that possible litigation may result if women are not informed about embolisation [and other alternatives] to hysterectomy for fibroids, as hysterectomy has a significant complication rate both short and long term, which would not be experienced by women being treated by embolisation.
    They asked for more details
  • Mr Tom Hain
    The Centre for Health Information Quality
    Expressing concern at the quality of health information in RCOG's patient information leaflet on hysterectomy.
  • NICE Interventional Procedures Appraisal Consultation
    FEmISA submitted a comprehensive document in response to the consultation on proposed recommendations. This included 120 new clinical papers, analysis of the most important ones, information on the morbidity and mortality of hysterectomy and other treatments and recommendations to improve the process.
    NICE said they would consider all the documents submitted under the consultation process and would perform a systematic review of embolisation.
  • Mr Simon Williams
    Director of Policy, Patients Assoc.
    Asking for help in persuading gynaecologists to inform women about embolisation as a treatment option for fibroids and concerns about the NICE Interventional Procedures Review on embolisation.
  • Prof Rory Shaw
    Chairman, National Patient Safety Agency
    Asking them to encourage gynaecologists to inform woman about UAE as a treatment option for symptomatic fibroids and complaining about the lack of information on side effects and complications from hysterectomy in the RCOG patient brochure on hysterectomy.
    They referred FEmISA to NICE.